POTS In The News
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Katie Ledecky Has POTS, Postural Orthostatic Tachycardia Syndrome
Forbes Bruce Y. Lee | August 16, 2024 U.S. Olympian Katie Ledecky looked pretty smooth in the water at the Paris Olympics, where she swam to two gold medals, a silver and a bronze, to bring her career Olympic medal haul to 14. But beneath the surface, things haven’t been completely smooth swimming for Ledecky for the past nine years. The nine-time Olympic gold medalist has had to deal with POTS. And in this case, POTS stands for postural orthostatic tachycardia syndrome. Each of the words in POTS is a clue to what the condition is. “Postural” means that is had to do with how your body is positioned. The word “Orthostatic” refers to standing upright. “Tachycardia” is when your heart rate exceeds a hundred beats per minute. And “Syndrome” is when you have a group of symptoms occurring together. In her recently published memoir entitled Just Add Water: My Swimming Life, Ledecky chronicled how she was diagnosed with POTS after the 2015 swimming world championship held in Russia. POTS is a pool problem—not a swimming pool one but a situation where blood is pooling in your arms, abdomen, pelvis and legs and not enough is getting up into your head and brain. Now, typically, when you stand up, around 10% to 15% of your blood will fall to the lower half of your body because of, you know, gravity. Since this means less blood to that round thing that sits on your neck, you may occasionally and temporarily feel a bit lightheaded here and there, especially if you stand up rather quickly. Click to read more
Christina Applegate's 13-year-old daughter reveals POTS diagnosis: 'I genuinely felt so sick'
Entertainment Weekly Emlyn Travis | June 26, 2024 Christina Applegate’s 13-year-old daughter, Sadie LeNoble, has revealed that she was recently diagnosed with Postural Orthostatic Tachycardia Syndrome. “I have something called POTS,” LeNoble, whom Applegate shares with husband Martyn LeNoble, explained on a recent episode of her mom’s MesSy podcast. “I have no clue what it actually is, but it’s something to do with the autonomic nervous system and it affects my heart. When I stand up, I get really, really dizzy, and my legs get really weak, and I feel like I’m going to pass out. And I have fainted before — I have gone unconscious — but that doesn’t usually happen. That’s only on really bad days.” POTS is a condition that causes “your heart to beat faster than normal when you transition from sitting or lying down to standing up,” according to the Cleveland Clinic. There is no cure for the disorder, but patients can manage their symptoms through exercise, diet, and sleep, and by monitoring their pulse and blood pressure. Click to read more
US soldier, 24, says Moderna COVID vaccine gave her debilitating heart condition
They’re young and athletic. They’re also ill with a condition called POTS.
Washington Post Ariana Eunjung Cha | April 10, 2024 Kaleigh Levine was running drills in the gym with her lacrosse team at Notre Dame College in South Euclid, Ohio, when everything turned black. “The coach wanted me to get back in the line, but I couldn’t see,” she remembered. Her vision returned after a few minutes, but several months and a half-dozen medical specialists later, the 20-year-old goalie was diagnosed with a mysterious condition known as POTS. First described more than 150 years ago, the syndrome has proliferated since the coronavirus pandemic. Before 2020, 1 million to 3 million people suffered from POTS in the United States, researchers estimate. Precise numbers are difficult to come by because the condition encompasses a spectrum of symptoms, and many people have still never heard of it. Recent studies suggest 2 to 14 percent of people infected with the coronavirus may go on to develop POTS. Click to read more
What is POTS? And how is it related to long COVID?
A Little Known Nervous System Disorder Caused My Long COVID Symptoms
Women’s Health Sujana Reddy, DO, with additional reporting by Jackie Lam | May 6, 2023 For people with POTS, their blood vessels don't contract properly to promote blood flow to their heart and brain while they're standing. This causes dizziness, fainting, and exhaustion when standing for a long time. So, the longer they're upright, the more their blood pools in the lower part of their body. This results in not enough blood returning to the brain and causes lightheadedness, brain fog, and fatigue. As their nervous system continues to pump out hormones to get the blood vessels to tighten, their heart rate increases, leading to chest pain and shakiness. The treatment for POTS is mainly increasing blood volume to improve circulation. I started trying different medications, and none of them worked for me. So, I'm treating it by drinking a ton of water, taking salt tablets to help my body retain fluids, and wearing compression stocking to get my blood flow going. I also get a weekly IV infusion now of one to two liters of fluids depending on how sick I am. Click to read more
A condition called POTS rose after covid, but patients can’t find care
Washington Post Amanda Morris | February 27, 2023 “When the autonomic nervous system is not functioning properly, any or all of those things can go a little haywire,” said David R. Fries, a cardiologist and POTS specialist at Rochester Regional Health. POTS patients typically experience a marked rise in heart rate when standing and a complex combination of symptoms, including dizziness, brain fog, fainting, headache and fatigue, among many others. There is no known cure for POTS, but physical therapy, medications and diet changes related to salt intake can sometimes help. Experts say there is a dire shortage of medical professionals who know how to care for patients with POTS. Lauren Stiles, president and chief executive of Dysautonomia International, a nonprofit advocacy group, estimates that the number of people with POTS has at least doubled since the start of the pandemic, while the number of specialists has remained the same and waiting lists are getting longer. Click to read more
These Five Women Are Helping Doctors Crack the Long-Covid Mystery
Bloomberg Jason Gale | November 1, 2022 Seven months later, while enrolled in a study into Covid’s effects on the heart, she learned the cause: a condition called postural orthostatic tachycardia syndrome, or POTS. Even standing at the kitchen sink doing the dishes can bring on the feeling that she’s about to faint, and her doctor advised her to use a wheelchair to conserve her energy. “It’s almost like I’m wrapped in a lead blanket,” says McGinn, who was diagnosed with chronic fatigue syndrome (CFS) in July and told two months later that she’ll never be well enough to work again. “It still feels like I’m running a marathon when I’m just standing there washing my hair.” Researchers say POTS occurs when Covid damages the autonomic nervous system that controls heart rate, blood pressure, digestion and body temperature. Although some sufferers recover, the majority live with it as a long-term, chronic condition. POTS can be a foreboding sign. With time, patients often resemble those with chronic fatigue syndrome, Yale’s Iwasaki says. A study of 41 long-Covid patients published in December found almost half met the diagnostic criteria for chronic fatigue syndrome. Acute infections are believed to be a leading cause of the syndrome, which leaves at least a quarter of sufferers bed- or house-bound for long periods. Click to read more
Mom of 2 shares journey to wellness after diagnosis with POTS, gets second chance at life
News 5 Cleveland Mike Holden | October 25, 2022 "Some studies show it can take six or eight different medical providers—many years before people get diagnosed," said Dr. Robert Wilson, Neurologist and Director of the Autonomic Center in the Department of Neuro Muscular Medicine at Cleveland Clinic. "It makes you feel a little less crazy because he confirmed like, yes, these are the symptoms. This explains it. I was losing hair. I mean, hair was just coming out," said Botti. Wilson says POTS is caused by reduced blood volume when a person stands up — specifically, intolerances to postural changes and the body's inability to regulate blood volume. It’s most common in women ages 15-50, but men are frequently diagnosed as well. Wilson says POTS can be caused by a severe head injury, viruses — like COVID-19, and autoimmune issues. Click to read more
West Ham goalkeeper Sophie Hillyerd on POTS, the condition 'that nobody else can see'
ESPN Taryn Heddo | October 20, 2022 The lack of answers is a common theme among patients who have Long COVID. In a Pultizer Prize-winning explainer on Long COVID by Ed Yong, patients describe the dismissal or disbelief of their symptoms by friends, family and even medical professionals. However, Hillyerd spoke glowingly about the medical team at Charlton, led by Dr. Chris Schoeb, and the way that they continued to pursue answers in the face of inconclusive tests. "He never gave up," she said of Dr. Schoeb, and he helped her book an appointment for the specialist to confirm his suspicions of a condition known as POTS. Postural orthostatic tachycardia syndrome -- POTS -- has some tell-tale signs. They can include dizziness, brain fog, chest pains, fatigue, and a heart rate that increases by over 30 when standing. It is also a common diagnosis for people experiencing Long COVID. Most people have never heard of the condition, let alone know what the signs are, and can go months or even years before diagnosis. Click to read more
Long COVID and POTS: 7 questions about the condition, including if it can go away on its own
Can Postural Orthostatic Tachycardia Syndrome, POTS, Be A Long Covid Symptom?
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Halsey opens up about being called 'crazy, anxious and lazy' before recent health diagnoses
USA Today Hannah Yasharoff | May 12, 2022 "I started getting really, really, really sick. I've been kind of sick most of my adult life, but it started getting really bad (after giving birth)," Halsey continued, noting she is "allergic to literally everything" and was hospitalized for anaphylaxis. The singer saw "100,000 doctors" before getting diagnosed with Ehlers-Danlos syndrome, Sjogren's syndrome, mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS). Click to read more
‘I Had Never Felt Worse’: Long Covid Sufferers Are Struggling With Exercise
‘Jeopardy!’ apologizes for an ‘outdated and inaccurate’ clue about a debilitating medical condition
After Months Of A Racing Heart And Burning Feet, A COVID Long-Hauler Gets A Diagnosis
On the Heels of COVID-19: Influx of Patients with POTS Symptoms
The article I wish I'd had: Diagnosed with POTS and still anchoring the news
WPDE Summer Dashe | November 13, 2019 I can’t pinpoint the day I woke up and my body stopped working as it should. For me, it was gradual, but sudden all at the same time. Some patients with POTS can tell you the exact date their autonomic nervous system malfunctioned. The autonomic nervous system controls everything you don’t think about. Think “auto,” like “automatic.” Some of those tasks include breathing, digestion, pupillary response, temperature control, heart rate, bladder function and blood pressure. That means the effects are widespread and symptoms are many. Vanderbilt University in Nashville, Tennessee, has an autonomic dysfunction clinic. Their criteria for diagnosing someone with POTS is an increase in heart rate of at least 30 beats per minute upon standing. Click to read more
POTS: Tori and Nick Foles battle 'the most common condition you've never heard of'
CNN Sandee LaMotte | June 26, 2018 “Research from Mayo Clinic shows that the quality of life in POTS patients is similar in what is seen in congestive heart failure, or chronic obstructive pulmonary disease,” said Dysautonomia International co-founder and President Lauren Stiles, who is also a POTS patient. It’s estimated POTS affects between 1 and 3 million Americans. But since so few doctors are educated on the symptoms, experts believe numbers could be much higher, both in the US and in the rest of the world. POTS support groups are found in Australia, Brazil, Canada, Egypt, France, Germany, Ireland, Israel, Japan, Mexico, the Netherlands, New Zealand and the United Kingdom. Click to read more
12 'Embarrassing' Symptoms of Dysautonomia We Don't Talk About
Speedskater Brittany Bowe After Concussion: “I Wasn’t Sure Returning To Sport Would Even Be An Option”
TeamUSA.org Brittany Bowe | October 19, 2017 For those of you new to my journey to the 2018 Olympics, I should start by explaining that I suffered a concussion last season that led me to the decision to end my race season early and focus on my health. A number of challenges arose after my injury. After showing signs of vestibular dysfunction for a prolonged period, I was diagnosed with Post-Concussion Syndrome – not uncommon after sustaining a head injury. Another issue, which isn’t as common, is called “POTS.” I was diagnosed with POTS back in October 2016 after having fainted on more than one occasion, and little did I know this relatively unknown diagnosis would become a daunting part of my everyday life. POTS stands for postural orthostatic tachycardia syndrome, and essentially means the body does not control blood pressure or heart rate as it should after you stand up. This can make you feel dizzy, lightheaded and lead to fainting. After the diagnoses, I began a vestibular rehab program, began monitoring “POTS” episodes and continued to train to the best of my ability, with hopes of competing in the world single distance championships and having the chance to defend my world sprint championship title. After months of having more downs than ups, I realized that there was more than salvaging a season that I needed to be worrying about. Click to read more
‘Bubble girl’ is allergic to life
Frequent Fainting: a Sign of Autonomic Nervous System Trouble?
US News & World Report Magaly Olivero | April 8, 2015 If you’re prone to feeling dizzy or fainting simply from standing, you may be suffering from a legitimate medical condition that often goes undiagnosed and untreated. An estimated 500,000 to 3 million Americans have postural tachycardia syndrome, a disorder of the autonomic nervous system that causes people to experience an excessive increase in their heart rate when they stand. About 80 percent of patients are women, most in their childbearing years. Symptoms include dizziness, fainting, fatigue, lightheadedness, heart palpitations, headaches, tremors, anxiousness, poor concentration, blurred vision and shortness of breath. The symptoms typically worsen on standing. People with POTS often slip through the cracks because the symptoms are difficult to diagnosis and sometimes cast aside by the medical community, experts say. "A lot of these patients are being dismissed. Doctors who aren't familiar with the condition are likely to tell patients they're crazy, stressed, depressed or aren't getting enough sleep because they have young children," says Dr. Sadaf Khorasani, a neurologist at Saint Francis Hospital and Medical Center in Hartford, Connecticut. Click to read more
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